Vaincre la Mucoviscidose in english
What is cystic fibrosis (CF)?
Cystic fibrosis is an inherited genetic disease that affects the lungs and digestive tract of about 6300 children and adults in France. A defective gene and its protein cause the body to produce unusually thick, sticky mucus that:
- Clogs the lungs and leads to life-threatening lung infections
- Obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. In 1965 the predicted median survival age was 7 years old. Life expectancy at birth is 46 years, in 2007.
About “Vaincre la Mucoviscidose”
“Vaincre la Mucoviscidose” is a non-profit organization created in 1965 by parents of children with CF. The foundation follows 4 goals :
95% of our resources come from people’s charity and generosity.
Once a year, the last week-end of September, “Vaincre la Mucoviscidose” organises its main event throughout France “Les Virades de l’espoir”. This day is based on the idea that people who can, should give their breath for those who cannot. Sport activities and games are organized everywhere in France to collect money.
“Vaincre la Mucoviscidose”, an actor in Europe and around the world.
“Vaincre la Mucoviscidose” invests itself in numerous meetings and collaborations with several CF actors in order to increase the knowledge of cystic fibrosis (NACFC and ECFConf).
Every year, members of research and medical department assist to the North American conference, and the European conference.
For the first time, in 2007, “Vaincre la Mucoviscidose” organised the first European CF young investigators meeting in collaboration with non-profit CF organizations such as “Association Muco Vereniging” from Belgium, “Mukoviszidose.ev” from Germany, “Nederlandse Cystic Fibrosis Stichting” from Holland and “Lega Italiana Fibrosi Cistica” from Italy.
CF organizations around the world